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| No matter who we are, patient, caregiver, family or friends of patients or caregivers, we all need support. We need to know there is always someone there to talk to, to lend a helping hand, to lean on, to just plain listen, to know we are not alone. There are individuals and groups worldwide offering this help. |
        
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Support Groups |
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There are literally thousands of support
groups. They take many forms. They may be a Usenet newsgroup, an
email list, a chat group, or a real,
go-to-a-meeting-and-meet-people-face-to-face support group.
Choose the kind that you think will help you the most and join
in! The water's fine! SWA. The Scleroderma Webmaster's Association maintains a worldwide listing of support groups. Translated into 14 languages, these pages offer support in Bahasa Malaysia, Deutsche (German), English, Español, Français, Greek, Hebrew, Italiano, Kannada, Magyarul (Hungarian), Nederlands, Polski, Portugués, and Romana. Scleroderma Support Club. "Over the past several years, support and information online for scleroderma patients has exploded. Where you could barely find a definition of the disease before, you can now find chat, a Usenet newsgroup, and many, many wonderful websites. This is yet another place for those who live with scleroderma every day." Arthritis Site - About.com. Site has information for and about all arthritic/autoimmune diseases. Included here are news updates, several different chats, Forums (Message Boards), well-written articles, information on medications and different treatment options. Usenet - alt.support.scleroderma. A newsgroup, alt.support.scleroderma is a place where all can discuss with other scleroderma patients/family/friends all aspects of the disease. Return to Support |