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| The internet is a big place. There is a lot of information out there. Some are very, very good, and some are very, very bad. On this and the linked categorized pages are some web sites we have found useful. |
        
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Lungs |
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Systemic scleroderma can and will affect the
lungs. Possible pulmonary problem include: Pulmonary
Hypertension, Lung Abscesses, Pulmonary Fibrosis, Aspiration
Pneumonia, and Pleural Effusions. Careful monitoring can detect
these problems early on. Pulmonary Fibrosis Information Page. "This site is about Pulmonary Fibrosis, also known as Idiopathic Pulmonary Fibrosis, Interstitial Pulmonary Fibrosis, DIP(Desquamative interstitial pneumonitis), UID(Usual interstitial pneumonitis) or just Pulmonary Fibrosis." The Chronic Lung Disease Resource. A great site with links to information on Chronic Obstructive Pulmonary Disease, Interstitial Lung Disease, Respiratory Infection. This information includes "Living With COPD," and "COPD Survival Guide." Pulmonary Hypertension Association. The Association provides information to patients, families, physicians, researchers and the public at large on issues such as current research and findings, early detection, resource organizations, organ transplantation, and support networks." Scleroderma Lung Study. Subjects with Scleroderma Needed for Study of Effectiveness of Treatment for Active, Symptomatic Pulmonary Alveolitis due to Systemic Sclerosis - Recruiting from 6-1-2000 to 12-31-2002. This is a nationwide study to evaluate the effectiveness of oral cyclophosphamide versus oral placebo in the treatment of active, symptomatic lung disease (pulmonary alveolitis) due to scleroderma. The goals of this study are to determine if lung function, quality of life and the ability to function has improved with therapy. Subjects will receive study related exams, lab tests and medications at no cost. Return to Medical |